At just 14 years of age, Jonathan Pitre has suffered through more pain than anyone should ever experience.

Diagnosed with a severe form of Epidermolysis Bullosa, Jonathan’s skin is so fragile it blisters and injures leaving him with painful sores over his entire body.

Dubbed the Butterfly Boy, despite the challenges he faces in life, Jonathan’s outlook is inspiring.

“I’m already past half my life, so when you think about that – it gives you new perspective,” he says in a documentary with Bancroft TV.

“That’s why you should live life to the fullest.”

Determined to make the most of his time left, Jonathan is an EB Ambassador for charity DEBRA Canada.

First diagnosed with the condition when he was a young child, according to his mother, Tina Boilea, it started with blisters on his hands.


Eventually things got that bad he stopped breathing because of the blisters that had formed in his throat.

The condition means he now must face a daily regime of medication, soaking in the bath for three or more hours and full body bandage wraps.

It’s a process that leaves him in a lot of pain.

Despite the bleak outlook EB holds over his future, the teenage nonetheless has a positive outlook on life.

“… You should not always think about what you don’t have, think about what you do have,” he says.

“Think of all the happiness around you. Think about all the love. Not all the negative stuff.”


This is one teen giving us a new outlook on life.

h/t Metro

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